Neonatal death is when a baby dies within the first 28 days after birth. This includes those born before 24 weeks of pregnancy when the baby has shown signs of life. 

If you have experienced neonatal death, please know that our support is here for you

There are many families affected by neonatal death in the Sands community. Connecting with others can show you that you have far more in common than you expected. 

Our Helpline is open 10am to 3pm Monday to Friday and 6pm to 9pm Tuesday, Wednesday and Thursday evenings. You can also call us on 0808 164 3332 or email the team at helpline@sands.org.uk 

Alternatively, you can find out other ways we offer support and more information in our Bereavement Support book

 

Understanding why your baby died

Some babies live for just a few minutes, and others may life for several days or weeks.

You may find it useful to read our information about how you and medical professionals can understand why your baby has died

 

Neonatal intensive care units 

Some babies are taken to a neonatal intensive care unit (NICU) after they are born. They will be provided with the best possible care, but it can be difficult for parents to know how to interact with their baby in this space. You can ask the healthcare staff who are looking after your baby whether there are any tasks you can take part in. Even if you feel helpless, you can talk or sing to your baby. 

You may find it useful to read our information about Neonatal care and end of life in our Bereavement Support book, which gives more detail about what to expect. 

 

Withdrawing life support 

It can be very difficult to decide when or whether to withdraw life support. You may find that you agree or disagree with your healthcare professionals, or with your partner if you have one. It is important that you are given the information that you need, so do not be afraid to ask questions, and repeat those questions if necessary. 

 

Remembering your baby 

There are many ways of making memories, including taking photographs, hand or footprints. Please talk to your midwife or other healthcare professional so that they can help you. Sands can also provide a memory box so that you can keep and continue adding important memories. 

You may find it helpful to read the pages on Remembering your Baby and Saying Goodbye to your Baby in our Bereavement Support Book

 

Useful links and organisations

 

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