Below you will find information on how we work with other charities and organisations.
If you are looking for organisations that offer bereavement support, emotional support, information and advice, please click here.
Baby Loss Awareness Alliance
Sands is a member of member of the Baby Loss Awareness Alliance, which hosts annual Baby Loss Awareness Week.
The week takes place on 9-15 October and is an opportunity:
- For bereaved parents, and their families and friends, to unite with others across the world to commemorate their babies’ lives
- To raise awareness about the issues surrounding pregnancy and baby loss in the UK, and push for tangible improvements in bereavement care and support
- To let the public and key stakeholders know what charities and other supportive organisations are doing on bereavement care and support around pregnancy and baby loss.
The charities leading Baby Loss Awareness Week are committed to raising awareness of pregnancy and baby loss, providing support to anyone affected by pregnancy loss and the death of a baby, working with health professionals and services to improve bereavement care, and reducing preventable deaths.
Pregnancy & Baby Charities Network
The Pregnancy & Baby Charities Network represents UK charities whose focus is to:
- reduce the number of babies who die during pregnancy, birth or in the early weeks of life
- reduce morbidity in newborn babies and improve care for these babies and their parents
- improve care throughout the path to parenthood; before, during and after pregnancy and after losing a baby or pregnancy
The Pregnancy & Baby Charities Network is governed by agreed Terms of Reference.
Maternity Bereavement Experience Measure (MBEM)
The Maternity Bereavement Experience Measure (MBEM) aims to enable parents whose baby has died the opportunity to feed back about the care they received. This feedback will be used to inform best practice and service improvements locally.
In 2013 Sands asked bereaved parents to answer questions on the suitability of and the need for a feedback mechanism to capture their experiences of care. The 2013 survey received a fantastic response with over 700 completed surveys. The information from this survey has resulted in a project funded by NHS England with Sands, NHS England and the London Maternity Clinical Network working together to create an appropriate feedback mechanism to enable parents to inform service improvements.
This second survey, carried out in December 2016 received around 450 responses. It invited parents affected by the death of a baby to directly affect the design of this feedback mechanism.
National Bereavement Care Pathway (NBCP)
Sands is leading the National Bereavement Care Pathway (NBCP) project in collaboration with other charities and with the support of the Department of Health and the All Party Parliamentary Group on Baby Loss.
Pregnancy loss and the death of a baby is not a rare occurrence. Thousands of parents each year will experience the devastation of their baby dying before, during or shortly after birth or within the first years of life.
The quality of care that bereaved families receive when their baby dies can have long-lasting effects. Good care cannot remove parents’ pain and grief, but it can help parents through this devastating time. Poor care can and does make things much worse.
The bereavement care received by parents varies hugely regionally. All bereaved parents should be offered the same high standard of parent-centered, empathic and safe care when a baby dies.
One Voice is a collaboration between the Royal College of Midwives, Royal College of Obstetricians and Gynaecologists, Royal College of Paediatricians and Child Health, Sands (the stillbirth and neonatal death charity) and National Childbirth Trust. The collaboration aims to ensure the best outcome and for mother and baby and best possible experience for mothers, fathers and families, through pregnancy, birth and postnatal care. At a time of renewed interest in transforming maternity services across the UK One Voice aims to bring together organisations that collectively represent the voice, experience and expertise of parents and professionals.